The joy of life on Sukama

Malcolm at helm of yacht steering us to anchorage off island of Guadeloupe

After our whirlwind week in the UK visiting Malcolm’s Mum Jean and finding her in remarkably fine spirits, a couple of powerful DanceSyndrome sessions connecting with each other in person and other organisations in our dance world including our partners from Japan, and playing catch up on various fronts, we were happy to be heading back to Sukama.  UK, Antigua, … Read More

DanceSyndrome 17 years on

Donna Jen and Lucy pointing to you in front of ClubHubUK banner

Thank you for noticing and for your congratulations!  Can it really be 17 years since we took those first faltering steps towards the birth of DanceSyndrome? Like so many decisions it was driven by necessity.  Jen’s world was crumbling around her and the frustration of her aspirations not being recognized just because she has a learning disability was too much … Read More

Thank you for being part of extraordinary lives

Donna Wheeldon and Jen Blackwell standing next to each other on stairs in graduation robes before Jen's honorary degree graduation July 2024

We have so much to give thanks for. So many people over the years have said “yes”, or “I don’t know but have you tried…” and supported our ambition that Jen born with Down’s syndrome, and others like her to be treated like any other human being – having the right support and opportunities to pursue their dreams and follow … Read More

Holidaying Blackwell style

What a beautiful summer at the end of a beautiful year from nomadics living our lives of choice. I feel like the luckiest person alive as Malcolm and I celebrate 46 years of marriage. Pity about the weather! Depression after depression after depression this August 2024, but the right place for us to be is out on the water. Otherwise … Read More

Blowing in the wind

Elizabeth's cows

There are times in life you feel in control, and others where you feel powerless, inconsequential, insignificant, incapable. My nature is to be positive, driven, energetic, but just now I’m riding the roller coaster of grief after my mum passed away a few weeks ago. It’s difficult to focus. You think you’re on top of it, putting on your ‘can … Read More