Signposts are a guide. Take the next step.

Nobody has to do it alone. Pick one link. Make one call. This is how extraordinary begins.

Need help now?

In immediate danger, call 999 or your local emergency number. Need to talk to someone now? Find a free helpline in your country

For families and carers

You are not the first family to stand where you're standing. Others have walked this road and built support for you. Don't be alone. We ALL need support.

Contact

Charity for families with disabled children, from birth to 25, anywhere in the UK.  They will connect you with local groups and families who get it.

Scope

Charity for disabled people and those who care for them. Advice on benefits, care, work, housing and equipment.

Parent Carer Forums

Lists parent-led forums in every area of England. Parents in your area are already shaping local services.

Join them.

Your local council

Every council in England must publish what is available locally for children and young people with special educational needs and disabilities.

Mencap

Charity supporting people with intellectual disabilities. A directory of local groups across England, Wales and Northern Ireland, and an online community for families.

Sense

Charity supporting people with complex needs to connect, communicate and live life fully.

Local services and support available in England, Wales and Northern Ireland.

Information & advice
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Carers UK

If you care for someone, of any age, with any condition ask for help.

Online support groups & helpline

Carers Trust

Find local support for yourself or someone you know who is caring for someone, of any age, with any condition.

Local groups

Who else needs a signpost to a first step?

For each group below there are two first steps: one if this is you, and one if you are the person walking past.

For families around the world

Where ever you live, don't be alone. We ALL need support.

Inclusion International

Global network of family-led organisations for people with intellectual disabilities. Many were started by parents. Browse the members by region to find the one nearest you.

Special Olympics

Runs programmes in around 190 countries.

For many families, it is the first community they find.

211

211 in the United States and Canada is one number for local help of every kind: housing, food, benefits, family support.

CALL 211 - it connects you to expert, caring help. 

Find a helpline

Lists free emotional support lines in more than 130 countries.

Use it when you, or someone in front of you, needs to talk to someone now.

Available from mid-November 2026

Who are you missing? In your home, In your work, In your heart. In your life. Beyond Extraordinary by Sue Blackwell Book front cover