Do you see me

The business of changing lives

For Learning Disability Awareness Week 2024 this question, “Do you see me?” posed by Mencap is so deep and so profound, whilst simultaneously distressing, disappointing, and painful that it even merits consideration. It is a sad travesty of the 21st century, an inditement of the way society has stood idly by as people who happen to be learning disabled or … Read More

Friendships – good for our mental health

Jen and friend Peter celebrating together

Friendship is something most of us take for granted. Even though I’m naturally shy and introverted, and didn’t easily make friends in the playground, preferring my own company, I now have a wide circle of friends and acquaintances around the world. Some I don’t see or speak to often, but that doesn’t stop us from picking up where we left … Read More

Changing lives one person at a time

DanceSyndrome impacts families

When the idea for gathering dancers with and without learning disabilities together to learn skills, create choreography and support each other to develop it was because nothing existed to support our daughter Jen to do what she wanted to do – Dance. Jen, with a her support team at that time, came up with idea in her bedroom, then put … Read More

Express Day 24 review

Dancers with and without learning disabilities Express Day 24

Dodging the cloud bursts we arrived at Blackburn Empire Theatre excited to watch Express 24, the annual show of the multi-faceted talented dance charity, DanceSyndrome. The Sunken Forest was an opportunity to put aside the cares of the world, allow yourself to be enveloped by finely wrought, enthralling, enchanting spell binding ballet.  The dance was absorbing as dancers shared their … Read More

Travel offers opportunity to new adventures

Jen and Malcolm waiting for train on station platform

Travel – And why not?  For anyone, everyone.  Even those who are deemed not to be able to handle change well. Without travel doors remain closed, opportunities are denied, adventures not experienced, face to face connections have no chance to flourish.  And so it’s been these past few 4 days. 4,640 miles 9 hrs flight, + 8 hrs transfer and airport + … Read More

Working together

Donna and Jen working together. Photo by Melissa Cross for Empower Housing Association

It’s fascinating what the two words, “working together” conjure up  isn’t it? Does it really mean two or more people joining together in an equitable relationship to create something? Or does it mean that someone is wanting to do something for you that really only benefits them or their organisation, but because it may be seen as “helpful” it can … Read More

Is every relationship equitable?

Jim Thomas and Sue Blackwell in conversation with Tracey-Jane Hughes - Equitable relationships

In my experience the simple answer is no. But should every relationship always be equitable? I believe every person has the right to be seen and heard in the language appropriate to them, with every voice and person of whatever age, ability or background, being able to contribute their thoughts, ideas fairly and equally with those they are in relationship … Read More

Ending stereotypes

Ciara and Jen conversation

We don’t care that Jen has Down’s syndrome. Jen is Jen and that’s the bottom line. For Jen, celebrating all those around the world with an extra chromosome, or Trisomy 21 is important. For Jen, it’s a celebration of her and people like her being recognized and valued for who they are. We have strict instructions to wear odd socks … Read More

The joy of inclusion

Eira playing with DanceSyndrome collective

The joy of inclusion is something that can’t be explained.  Rather it has to be experienced firsthand.  It’s interesting to consider it from various angles.  Here it is from the perspective of one perceptive visitor to the DanceSyndrome space recently:  One thing was that I didn’t know how I would feel entering their space. I wondered if I might feel … Read More

A box of books arrived

Secrets of Successful Women 2024 book front cover

A box just arrived……..a box of books.  Yes I’d ordered them, and yes, they’re all the same, but seeing your words in print in a proper book for the very first time is a proud moment.  Really?  Me?  Why me?  However did that happen?  Who’d have thought?  But then who’d have thought that the introverted shy 18 year old musician … Read More