Spot the dancers a mile off! A meeting of hearts and minds through dance, sparkles, smiles, two honorary Doctors of Arts from the University of Salford in 2024 communicate through their shared passion. From the moment we arrived at the prestigious Cholmondley Room Jen was on the look out for Dr Ria Meera Munshi. Her excitement was palpable. Yet again … Read More
Support must be fit for purpose – begin by listening
In all parts of our lives we find systems which are meant to be helpful. Support to navigate a certain aspect or point in time. Everyone accepts that ‘the system’ is broken. But until we listen intelligently to individuals, people with learning disabilities will continue to remain invisible. If we value everybody, truly believe in equity and equality of opportunity, … Read More
Solving the SEND Crisis – our opinions and evidence
The UK Government Education Committee inquiry “will focus on how to achieve both short term stability and long-term sustainability for the SEND system to improve experiences and outcomes for children and young people.” January 2025. We have submitted written evidence as parents of a 43 year old daughter with Down’s syndrome and feel that opening up the conversations, encouraging and … Read More
Eternal Opportunism
I have a problem. I have eternal opportunism written into my DNA. My glass is (almost) always half full, because if half empty I’d have walked off the end of that metaphorical short plank a long long time ago; or as Malcolm says, it keeps the men in white coats at bay. So how about you? Do you have clear … Read More
Thank you for being part of extraordinary lives
We have so much to give thanks for. So many people over the years have said “yes”, or “I don’t know but have you tried…” and supported our ambition that Jen born with Down’s syndrome, and others like her to be treated like any other human being – having the right support and opportunities to pursue their dreams and follow … Read More
The week that was spreading joy and happiness
The week that was! The precursor to the eventful week anticipated! Life with and for Jen is full on in so many wonderful ways no one could ever have foreseen. As a dancer Jen has made her mark. As a daughter, sister, aunt, niece, cousin, friend she is loved. As a leader, a flagbearer, a multi-award winner, a role model, … Read More
Leaders from unexpected places
Awards raise profile and awareness. This is our first exposure on a global stage making the largest minority in society more visible creating increased awareness for those in the room, opening eyes to the marginalized. Intellectual disability affects people from all walks of life across the world but all too often they are hidden from view rather than celebrated as … Read More
Holidaying Blackwell style
What a beautiful summer at the end of a beautiful year from nomadics living our lives of choice. I feel like the luckiest person alive as Malcolm and I celebrate 46 years of marriage. Pity about the weather! Depression after depression after depression this August 2024, but the right place for us to be is out on the water. Otherwise … Read More
Do you see me
For Learning Disability Awareness Week 2024 this question, “Do you see me?” posed by Mencap is so deep and so profound, whilst simultaneously distressing, disappointing, and painful that it even merits consideration. It is a sad travesty of the 21st century, an inditement of the way society has stood idly by as people who happen to be learning disabled or … Read More
Changing lives one person at a time
When the idea for gathering dancers with and without learning disabilities together to learn skills, create choreography and support each other to develop it was because nothing existed to support our daughter Jen to do what she wanted to do – Dance. Jen, with a her support team at that time, came up with idea in her bedroom, then put … Read More