This Down Syndrome Awareness Week 2025

Two ladies one wearing silver sparkles and sparkly headband one wearing white jacket. Both smiling, Creating shapes with their hands learning indian dance hand moves

Spot the dancers a mile off! A meeting of hearts and minds through dance, sparkles, smiles, two honorary Doctors of Arts from the University of Salford in 2024 communicate through their shared passion. From the moment we arrived at the prestigious Cholmondley Room Jen was on the look out for Dr Ria Meera Munshi. Her excitement was palpable. Yet again … Read More

Accelerate Action – it’s possible if we choose to act differently

Jen in green tshirt and Becky in red tshirt dancing. Male with glasses on in blue tshirt behind

The theme Accelerate Action coming from International Women’s Day 2025 is a powerful one. But only if we then take action on what we believe needs to change. I’ve had a wonderful couple of weeks capturing some conversations with some amazing women with different life experiences, cultures and stories from my own. But our commonality of wanting the world to … Read More

Changing lives one person at a time

DanceSyndrome impacts families

When the idea for gathering dancers with and without learning disabilities together to learn skills, create choreography and support each other to develop it was because nothing existed to support our daughter Jen to do what she wanted to do – Dance. Jen, with a her support team at that time, came up with idea in her bedroom, then put … Read More

Working together

Donna and Jen working together. Photo by Melissa Cross for Empower Housing Association

It’s fascinating what the two words, “working together” conjure up  isn’t it? Does it really mean two or more people joining together in an equitable relationship to create something? Or does it mean that someone is wanting to do something for you that really only benefits them or their organisation, but because it may be seen as “helpful” it can … Read More

Is every relationship equitable?

Jim Thomas and Sue Blackwell in conversation with Tracey-Jane Hughes - Equitable relationships

In my experience the simple answer is no. But should every relationship always be equitable? I believe every person has the right to be seen and heard in the language appropriate to them, with every voice and person of whatever age, ability or background, being able to contribute their thoughts, ideas fairly and equally with those they are in relationship … Read More

Ending stereotypes

Ciara and Jen conversation

We don’t care that Jen has Down’s syndrome. Jen is Jen and that’s the bottom line. For Jen, celebrating all those around the world with an extra chromosome, or Trisomy 21 is important. For Jen, it’s a celebration of her and people like her being recognized and valued for who they are. We have strict instructions to wear odd socks … Read More

The joy of inclusion

Eira playing with DanceSyndrome collective

The joy of inclusion is something that can’t be explained.  Rather it has to be experienced firsthand.  It’s interesting to consider it from various angles.  Here it is from the perspective of one perceptive visitor to the DanceSyndrome space recently:  One thing was that I didn’t know how I would feel entering their space. I wondered if I might feel … Read More

A box of books arrived

Secrets of Successful Women 2024 book front cover

A box just arrived……..a box of books.  Yes I’d ordered them, and yes, they’re all the same, but seeing your words in print in a proper book for the very first time is a proud moment.  Really?  Me?  Why me?  However did that happen?  Who’d have thought?  But then who’d have thought that the introverted shy 18 year old musician … Read More

Inclusion is fundamental to living

Sue and Jen Blackwell hugging

Asking me to write about inclusion is like asking me to write about breathing.  Inclusion is fundamental to living. Isn’t it! It’s normal for us humans to embrace others with a friendly smile, a hello, hug, handshake or wave – people you encounter everyday in your family, your community, on the bus, at the shops, at your school/college/work, or passing … Read More

A wander down memory lane

Young Jen Blackwell dancing

This weekend saw me dive into files I’ve not looked at for years.  Photos, articles, letters of support all focused on the Art of the Possible, even one from my old music teacher at school, then the deputy head with whom my relationship was complicated by the fact that she was also a personal friend of my parents.  She was … Read More